You have two extremely active individuals, mid-60s, looking to many more years of future travel, boating, loyal companionship and retirement. How things can change! Not feeling well in one instance, forgetting what one did with the car keys in the other.
A routine unconcerned visit to the GP, subsequent referral to a specialist and in 48 hours your life is in turmoil.
“You have dementia Mrs Mclean, it’s in the early stages and in your case the CT scans have identified Alzheimer’s. No, there is presently no cure.”
We then roll the dice once more. “You have a carcinoid tumour Mr Mclean. Its metastatic and barely noticeable. However, we have made an appointment for you to see a leading professor of oncology who may put you on trial for a new form of tumour suppressant.”
It’s the two words that everyone fears dementia and cancer.
This, therefore, is a deadly personal journey dealing with the many and varied implications of dementia. In this instance it meant caring for my best friend, confidant, advisor, lover and wife of 50 years, whilst fighting my own diagnosis.
Misdiagnosed, undiagnosed, misunderstood and often denied, this killer with no conscience, now mainstream, leaves but an empty shell as a memory.
If you know anyone with dementia, have been diagnosed in the early stages of dementia or if you are caring for a person with dementia, then you should definitely read this story of love, loyalty, passion and patience. A tale of never-ending belief in the future.
